Daily Living with Chronic Illness

As some of you are aware, I have a host of chronic, but, mostly invisible illnesses. Living day to day with this and being consistent in interacting with the world at large is often quite difficult. This is why I have a hard time posting on a consistent basis. I don’t care to share very often about it because there are so many people with serious issues that are so much worse. And I don’t care to appear as a whiner or attention seeking.

However, when I discover a way to get something done efficiently that would generally take a great deal out of me, I just have to share. I want others to be able to get “normal” things done that won’t take up their energy and do them in for the day. We’re talking “Spoon Theory” vs Shaving our legs! Today, I managed to shave my legs from the ankle to the knee. I did not have to struggle through a shower shave. Nor did I have to do a tub scrub afterwards!

First, let’s talk about that wonderful coconut oil! I have been using it for just about everything under the sun for the past year or so. It works brilliantly for someone such as myself with very sensitive skin. I use it for everything from oil pulling to bathing and shaving. The drawback to shaving with coconut oil is that it usually will clog your razor and make a mess of you tub/shower which then requires a scrub down. As someone with a disease of this caliber, I cannot possibly manage to wash and condition my hair, shave my legs and scrub the tub in the same day. Unless, that’s all I’m doing for the day. Like, literally ALL that I am doing. No meals cooked, no laundry done, no toys picked up. Heck, I’d be lucky to make it down the stairs with my 2 year old twins in tow. That just isn’t happening for me.coconut-oil

So, here’s what I did today: I went ahead and did my bathing and all of that good stuff. But, I really wanted to shave my legs. I knew that I simply didn’t have enough energy to manage it. So, I went ahead and finished up my routine with my morning all over coconut oil application. Then, I gathered my razor, a cup of steaming hot water and my towel. I lay down on my bed to rest a few moments and then began to shave my legs, on the bed, using the hot water to swish the razor vigorously to unclog it from the oil/stubble combination. I was able to lie back and rest at will. And although it took a little longer, it did take a lot less energy. I was able to simply lie down and nap directly after finishing up. I woke up rested with silky smooth legs. It was a win for me today.

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I know that the average person may not appreciate the seriousness of this post. But, to those who are chronically ill and fatigued, this could be quite helpful. I, personally, struggle with the desire to be a “normal” woman. The kind that always has smooth legs and dinner on the table. Alas, I often have to settle for getting clothes on and making it downstairs before noon. So, anything that will help me to feel normal without expending so much energy that it causes a flare up is, to me, a wonderful thing! God bless all my Sister Spoonies.

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Much Love,

Angie

 

 

 

 

Last Post

I have been quite busy of late. But, I hadn’t realized that my last post was in June! What have you been up to since then? We had a very busy summer with the family. The adoption of our little guys finally came through. So, we are now, legally, the proud parents of two year old twins!

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From right to left: Me, Judge Neil with Jesse on his lap holding the gavel, my Husband, Troy holding Connor and my Mom aka “MawMaw”. As you can see this was an incredibly happy day for us. All the stress of the past two years just seemed to fly away with the bang of the Judge’s gavel. So, we spent the summer making memories with the little guys.

I have been having a lot of flare ups these past months which has resulted in a lot of time being bed bound. And so it goes with Chronic illnesses. Unfortunately this also results in feelings of depression and a serious lack of motivation. Spending so much time in bed, I have watched a lot of shows and movies between Netflix and Amazon. I have fallen in love with True Blood, Grimm, The Walking Dead, Hemlock Grove, American Horror Story…are you seeing a pattern emerge? I am a fan of supernatural entertainment. I also love me some psychological thrillers and just things that get your mind going. I love The Black List, Bones, House… Speaking of Psychological Thrillers, have you read my Friend, Christa Wojciechowski’s book, “Sick”? She actually has a few out now. But, if your looking for something to blow your mind, start with this one.

http://ow.ly/4Onk304AgwT #amwriting #freebooks #freekindle #horror #suspense #shortreads

I enjoy reading very much and covet time alone to sneak into a quiet corner and tuck into a good book, when I am not suffering from a debilitating migraine, of course.

Anyway, one of the twins woke up at midnight tonight/ this morning and I was not able to get back into a good sleep. So, I spent some time in prayer, listened to some relaxing music, took a good, hot bath and still, sleep would not come. So, here I am, after months of absence and it feels good to be writing again. What do you do when you aren’t sleeping well?

Oops, my Husband just caught me! He wants to know what in the heck I am doing at this hour. Ha! Ha! He should be used to this by now. We’ve been together long enough. Well, that is a false statement. I don’t know if forever would be long enough with this man. Troy is the absolute best! We’ve had our ups and downs, as has any couple who have managed to stay together in this wild world. But, we have made it well past those early struggles. I have to tell you, it was all worth it in the end. The struggle, the pain, the heartaches…I wouldn’t change a thing.

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Well, it’s 0600 now and it looks like he’s up for the day. So, I’m going to take this rare opportunity to spend time with him before the twins wake up! Thanks for sticking around all these months. I promise that you’ll hear from me again soon~